This week’s Hope Is weekly roundup is a mish-mosh of holiday fun, self-care reminders, and a bit of a look back at advocacy efforts over the year. Plus, a bit thank you to all of those patient-centered organizations that welcomed me as a member! I know that the holidays can be a bit a tough time for some, so as much as I wanted to include some holiday hopefulness this week, I also wanted to include some self-care and gentle loving reminders.
Hope is celebrating the winter solstice with friends, yoga, and purple lotus candles. Love that the days are getting longer/brighter. Dark days are tough on mental health at times, so here’s to increasing sunlight!
Hope is sometimes just making it through the day. A friend sent me a photo of this sign and I love it. Right now especially, with increased demands of the holiday season, it can be especially tough on chronic illness. Holiday time is all about love and compassion- let’s not forget to give that to ourselves as well.
Hope is someone seeing the potential in what to others might look ordinary or even bare/empty. Love that someone decorated this tree in my neighborhood with a few Christmas bulbs. Sometimes life is like that – we just have to look a little harder to see the potential in the every day.
Hope is family, traditions, giving, sharing, love. That’s what my Christmas was filled with. Merry Christmas to all who celebrate.
Hope Is the chance to take time out for yourself when you need to recoup/recover/restore. For me, this is often mindfulness/yoga, or some other way to calm my cycling brain. Whatever you choose, self care is so important, especially during the busy, stressful holiday season.
Hope Is unexpected reminders that you are beautiful (in every way, inside and out, just as you are). I don’t usually whip out my phone in a bathroom, but I love this on the mirror at my yoga studio. Sometimes we could all use a reminder. This makes me smile every time I see it, and if I’m having a rough mental health day, that small moment in which it makes me smile can really help.
For more hopeful posts, and to follow along throughout the week, don’t forget to follow us on Instagram! Wishing you all a wonderful end to 2018!
It’s a new(ish) month, and that means it’s time for a new Linkup Party from A Chronic Voice. This month’s linkup is all about the holidays and chronic illness, a topic near and dear to my heart. This month’s prompts are: (Note: some of these are spelled the way that everyone but the U.S. spells them. I kept them that way – it’s how they were originally posted, and also it makes me feel fancy).
Holiday stress is different for everyone. For some, it’s family dynamics. For others, it’s the intense socializing and people-ing, which can be incredibly exhausting both mentally and physically, especially when you battle chronic illness. For others, it’s the expectation – it’s a season for joy and happiness and merriness, and those who are ill, especially those living with depression, often don’t feel this way. It can feel incredibly lonely and isolating, especially when you feel this way in a room full of people. For me, it’s a combination of all of these.
This year, I’m lucky that because of some… ahem… simplifying in my life (at least in my external commitments), I have fewer networking events, party obligations, etc. That’s helping considerably. There’s significantly less “Go to this party/event and feel super socially anxious and awkward and alone and depressed but smile and pretend everything’s fine because who wants to be the downer at the holiday party.” Additionally, I’ve been spending a lot of my previously free time in yoga teacher training and yoga classes (as part of teacher training), so while my schedule isn’t really any less busy, it’s filled with activities that, while intense, focus a lot on mindfulness, reconnecting to oneself, focusing on the present, and lowering stress levels. It’s also letting me surround myself with others who want to focus on these things, which can be a huge help. I feel emotions – mine and others’ – strongly and tend to absorb a lot of what’s around me. I find more and more, the company I keep and the atmosphere I’m in greatly affects me, and I have to keep this in mind, especially during super stress-induced, emotionally charged times like the holidays.
I’m somehow both an old soul, and a kid at heart, and the kid at heart comes out big time during the holidays. Christmas is literally my favorite day of the year. Growing up, holidays were a big deal in my family. We’d have Christmas morning at our house, but usually the next day or so we would drive up to my Grandma’s in Buffalo, NY and that entire side of the family would spend the week between Christmas and New Year’s Day together. Three generations of family, all celebrating, enjoying the same yearly traditions, laughing, and joking and singing (my grandma loved to sing), doing Chistmasy things, ringing in the New Year together. I remember walking with my grandma to get hot chocolate on the main street that ran through town. I remember all of the Italian Christmas cookies (some that we later found out were fruit cake made to look like cookies.. that was disappointing!). I remember making ridiculous family videos for New Year’s eve and doing family “talent shows” at the insistence of my Grandma. There was so much love and fun and silliness – LOTS of silliness – and togetherness. We didn’t have lots of money and it wasn’t some big formal affair. We just got together and enjoyed each other and the season. And even though my grandma passed away ten years ago, and only one great-aunt from that generation is still alive, and even though we haven’t gone up to Buffalo for the holiday in years, that all still stays with me. I savour all of those traditions. The cookie baking, the Christmas carols, the lights, the tree-decorating, the laughing, the singing, the togetherness.
Simplifying is a huge goal for me for 2019. A lot has changed for me in the past couple of years. I got married. I went from running a business full time to running it part time and working at a regular job part time, to running it on the side and working at a regular job full time. I increased my advocacy efforts and founded Spread Hope Project. I started yoga teacher training, which I’m still currently undertaking. I went back to church and am slowly beginning to understand my own spirituality more. A lot has been going on, and it’s left me feeling a little all over the place – like I’m constantly in numerous transitions and trying to navigate them all simultaneously.
So in terms of simplifying, I’m focusing on two aspects:
1.) Looking at what in my life still serves me, and what has run its course. Everything from clothes to organizations to that friend that you continually try desperately to hang on to only to realize that it’s been one-sided for a while, and really, they haven’t really been in your life for quite some time. (Note, I didn’t say that with anyone specific in mind, and I don’t plan on friend-dumping anyone, but I don’t need to chase ghosts either). It doesn’t mean that there’s anything wrong with the organizations or the clothes or the friend. But not everything that served you at one point will continue to for eternity. And when you try to make it so, you often get stuck.
2. I’m looking to simplify my inner life. Yoga teacher training and getting back in touch with my spirituality have been a big help. I’m focusing on trying to be more present, to focus on the small moments, to focus on joy and life and hope, and being a good, loving, giving, kind human being in the day to day, instead of feeling insignificant or inferior because the grand scheme of my life isn’t where I hoped it would be. This of course doesn’t eliminate my anxiety and depression because they’re illnesses with no cure, but it helps me feel less overwhelmed at times, and that’s a good start.
Resting is huge for me. If I don’t get enough sleep and rest, my moods cycle more, and I become more ill. It affects my IBS and migraines as well. I’ve been working on trying to schedule things more in advance if possible, so that I can also schedule rest time. Whether it’s getting to bed early or an afternoon/evening of walking Hallmark movies and letting my brain relax, I aim to actively plan rest time. And I try as much as I can to stick to these boundaries. I’m no good to anyone if I haven’t slept, am depressed and anxious, if I’m in pain from IBS and am having trouble seeing straight from a migraine.
This prompt is an interesting one, because it’s one I’m actually backing off on a little bit. In part because some of my main focuses are not the type of things that are finalized in the calendar year. For example, my yoga teacher training continues right on through the spring. The end of the calendar year only means we get a couple of weekends off to celebrate the holidays. But apart from that, the training continues on just like it would when transitioning between any other months of the year.
It doesn’t mean I don’t have goals for 2019, and I’m especially going to work on some goals for Spread Hope Project. I have ideas that I’d like to put into place, or at least work towards, and want to start to plan those steps out. But mostly, what I’m trying to “finalize” is to get myself into a better place personally, meaning internally, to start the new year, and I’m doing so by focusing on the above – the simplifying, the resting, the savouring, the de-stressing. I’m trying to take some of the self-imposed pressure off of myself, reset a bit, and be ready to start with a bit of a fresh perspective in 2019.
As always, thanks to Sheryl of A Chronic Voice for hosting the LinkUp Party! Check out her site, as well as the December posts for other chronic illness bloggers here!
Last night I watched the local news, and saw something miraculous – every single story was positive. The news was filled with groups donating food to those in need, Thanksgiving drives held by local organizations, individuals giving of their time, money, resources to help others. It was the only time I can remember, and certainly in recent history, that there was not one negative, sad, alarming, concerning news story. (There were plenty in the national news, but let’s not focus on that for a moment). It was all about giving. And this, for that half hour, filled me with hope. Because it proved to me that good still is all around us. It may at times be tougher to find. We may need to look deeper, to squint a bit to see it through to jumble of negativity, but it’s there.
And so, I wanted to give thanks for some pieces of my life that I feel most grateful for.
My closest friends who have been with me through everything
My dog Grace
Having had 10.5 happy years with my old dog Cinn before she passed.
A home, that I own.
Plenty of food
The means and opportunity to travel often
My creativity and imagination
My dreams and my ability to maintain hope (if sometimes only a sliver of it) even in the darkest times
A strong mental health and chronic illness support network
My therapist and my meds (completely serious)
Having health insurance, without which my meds would bankrupt me (really).
The many experiences in my past and present that have made me who I am today.