December LinkUp Party – Holidays and Chronic Illness

It’s a new(ish) month, and that means it’s time for a new Linkup Party from A Chronic Voice.  This month’s linkup is all about the holidays and chronic illness, a topic near and dear to my heart. This month’s prompts are:          (Note: some of these are spelled the way that everyone but the U.S. spells them. I kept them that way – it’s how they were originally posted, and also it makes me feel fancy).

De-StressingD

Holiday stress is different for everyone. For some, it’s family dynamics.  For others, it’s the intense socializing and people-ing, which can be incredibly exhausting both mentally and physically, especially when you battle chronic illness. For others, it’s the expectation – it’s a season for joy and happiness and merriness, and those who are ill, especially those living with depression, often don’t feel this way. It can feel incredibly lonely and isolating, especially when you feel this way in a room full of people. For me, it’s a combination of all of these. 

This year, I’m lucky that because of some… ahem… simplifying in my life (at least in my external commitments), I have fewer networking events, party obligations, etc. That’s helping considerably. There’s significantly less “Go to this party/event and feel super socially anxious and awkward and alone and depressed but smile and pretend everything’s fine because who wants to be the downer at the holiday party.” Additionally, I’ve been spending a lot of my previously free time in yoga teacher training and yoga classes (as part of teacher training), so while my schedule isn’t really any less busy, it’s filled with activities that, while intense, focus a lot on mindfulness, reconnecting to oneself, focusing on the present, and lowering stress levels. It’s also letting me surround myself with others who want to focus on these things, which can be a huge help. I feel emotions – mine and others’ – strongly and tend to absorb a lot of what’s around me. I find more and more, the company I keep and the atmosphere I’m in greatly affects me, and I have to keep this in mind, especially during super stress-induced, emotionally charged times like the holidays.

Savouring

I’m somehow both an old soul, and a kid at heart, and the kid at heart comes out big time during the holidays. Christmas is literally my favorite day of the year. Growing up, holidays were a big deal in my family. We’d have Christmas morning at our house, but usually the next day or so we would drive up to my Grandma’s in Buffalo, NY and that entire side of the family would spend the week between Christmas and New Year’s Day together. Three generations of family, all celebrating, enjoying the same yearly traditions, laughing, and joking and singing (my grandma loved to sing), doing Chistmasy things, ringing in the New Year together.  I remember walking with my grandma to get hot chocolate on the main street that ran through town. I remember all of the Italian Christmas cookies (some that we later found out were fruit cake made to look like cookies.. that was disappointing!).  I remember making ridiculous family videos for New Year’s eve and doing family “talent shows” at the insistence of my Grandma. There was so much love and fun and silliness – LOTS of silliness – and togetherness. We didn’t have lots of money and it wasn’t some big formal affair. We just got together and enjoyed each other and the season. And even though my grandma passed away ten years ago, and only one great-aunt from that generation is still alive, and even though we haven’t gone up to Buffalo for the holiday in years, that all still stays with me. I savour all of those traditions. The cookie baking, the Christmas carols, the lights, the tree-decorating, the laughing, the singing, the togetherness.

Simplifying

Simplifying is a huge goal for me for 2019. A lot has changed for me in the past couple of years. I got married. I went from running a business full time to running it part time and working at a regular job part time, to running it on the side and working at a regular job full time. I increased my advocacy efforts and founded Spread Hope Project. I started yoga teacher training, which I’m still currently undertaking. I went back to church and am slowly beginning to understand my own spirituality more. A lot has been going on, and it’s left me feeling a little all over the place – like I’m constantly in numerous transitions and trying to navigate them all simultaneously.

So in terms of simplifying, I’m focusing on two aspects:

1.) Looking at what in my life still serves me, and what has run its course. Everything from clothes to organizations to that friend that you continually try desperately to hang on to only to realize that it’s been one-sided for a while, and really, they haven’t really been in your life for quite some time. (Note, I didn’t say that with anyone specific in mind, and I don’t plan on friend-dumping anyone, but I don’t need to chase ghosts either). It doesn’t mean that there’s anything wrong with the organizations or the clothes or the friend. But not everything that served you at one point will continue to for eternity. And when you try to make it so, you often get stuck.

2. I’m looking to simplify my inner life. Yoga teacher training and getting back in touch with my spirituality have been a big help. I’m focusing on trying to be more present, to focus on the small moments, to focus on joy and life and hope, and being a good, loving, giving, kind human being in the day to day, instead of feeling insignificant or inferior because the grand scheme of my life isn’t where I hoped it would be. This of course doesn’t eliminate my anxiety and depression because they’re illnesses with no cure, but it helps me feel less overwhelmed at times, and that’s a good start. 

Resting

Resting is huge for me. If I don’t get enough sleep and rest, my moods cycle more, and I become more ill. It affects my IBS and migraines as well.  I’ve been working on trying to schedule things more in advance if possible, so that I can also schedule rest time. Whether it’s getting to bed early or an afternoon/evening of walking Hallmark movies and letting my brain relax, I aim to actively plan rest time. And I try as much as I can to stick to these boundaries. I’m no good to anyone if I haven’t slept, am depressed and anxious, if I’m in pain from IBS and am having trouble seeing straight from a migraine.

Finalising

This prompt is an interesting one, because it’s one I’m actually backing off on a little bit. In part because some of my main focuses are not the type of things that are finalized in the calendar year. For example, my yoga teacher training continues right on through the spring. The end of the calendar year only means we get a couple of weekends off to celebrate the holidays. But apart from that, the training continues on just like it would when transitioning between any other months of the year. 

It doesn’t mean I don’t have goals for 2019, and I’m especially going to work on some goals for Spread Hope Project. I have ideas that I’d like to put into place, or at least work towards, and want to start to plan those steps out.  But mostly, what I’m trying to “finalize” is to get myself into a better place personally, meaning internally, to start the new year, and I’m doing so by focusing on the above – the simplifying, the resting, the savouring, the de-stressing. I’m trying to take some of the self-imposed pressure off of myself, reset a bit, and be ready to start with a bit of a fresh perspective in 2019.

As always, thanks to Sheryl of  A Chronic Voice for hosting the LinkUp Party! Check out her site, as well as the December posts for other chronic illness bloggers here!

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It’s My First LinkUP Party! Thanks to A Chronic Voice

ReconnectingConfessing RelaxingRomanticizingSharing

Happy September, slightly belated! Recently, I learned of something pretty cool – LinkUp Parties hosted by A Chronic Voice (shameless plug, go check out her site and learn more about these!). The idea is, she posts writing prompts, we write about them, we share our posts, and we read and comment on others’ (there are more specific guidelines, this is generalizing it). I love writing, prompts, sharing, and connecting, so it seemed like a must do. This is the first time I’m participating in this LinkUp Party, and the writer-geek in me is pretty excited. The prompts for this month are:

  • Reconnecting
  • Confessing
  • Relaxing
  • Romanticizing
  • Sharing

I’ve decided to write a little on all five of the prompts because… well, why not!

Reconnecting

This one is super timely for me. This past weekend, my family suffered a tragedy.  It’s not my place to give details, as it wasn’t directly related to me, but my family members are dealing with an unfathomable loss. As tragedy tends to, it’s drawn us together, which has in turn made me realize how unconnected I’ve been to much of my extended family. I have cousins that I used to spend every holiday with that I haven’t seen in years. If it weren’t for social media, I am not sure I’d know what to half of my family is up to these days. I used to send birthday cards to even the most widely extended family members, and yet this past couple of years I’ve become increasingly bad at doing this. And so I’m actively working on reconnecting with family. Friends too, as I’ve been a bit of a social hermit lately, but family especially. Even if it’s a card, or a text, or a quick email to say hi or check in – we all live scattered throughout the country, many with families of their own, so in-person visits aren’t always feasible logistically. But even in this, I want to improve. I like road trips, I have airline miles. I should take the time and make the effort to see family more – time is our most valuable asset. It’s the one thing we can’t ever get back, and I need to be more cognizant of this and use more of my time reconnecting.

Confessing

Confession: I’ve been big time procrastinating and unintentionally self-sabotaging. Not in an obvious sort of way. Not the “oh yeah I’ll do the laundry tomorrow” and end up with no clean clothes type of thing. Instead, I’ve been procrastinating by continually brainstorming – subconsciously up until this point at least, but now that I’ve realized it the gig’s up. The thing is (confession part 2): I have a pretty serious fear of failure and rejection. Depression makes me convinced that I’m basically always going to fail and be rejected. And this fear often stops me in my tracks. So instead of actually writing pieces to be submitted, or starting on an advocacy project, I brainstorm about them… continually. I make lists. Lists of lists. I do everything but actually get started.  Now don’t get me wrong, brainstorming and list making can be incredibly useful and important tools… when they’re actually needed. But I’m realizing that I’m basically repeating lists and brainstorms over and over again in slightly different ways. I’m getting nothing new out of them. They’re just stalling me from actually beginning. But I just can’t make myself start. It’s like I sit down, ready to go, and poof, there goes every thought I ever had, gone from my brain, and I literally sit there staring. I know that deep down somewhere, it’s fear. And so, I’m trying to work through that. Even if at first I keep most of my articles or posts or projects or whatever it is to myself, I’m trying to get started on them. Even if what I end up with is a bunch of super rough drafts that I’d be embarrassed to show anyone in their current state, at least that gives me a starting point. Because true, the more I do, and the more I eventually, hopefully, put “out there” for others to see, the more chances I have of being rejected, or of failing. But also, the more chances I have of being successful as well.  And I also know that a sure fire way for me to stay afraid of something is to continually avoid it – because often, at least in my anxious brain, the anticipation is way more frightening than the actual situation itself. So I’m working on getting past that.

 

Relaxing

I am decent at relaxing physically, but relaxing my brain is a whole other story. Most frequently, I get engrossed in books, as a way of kind of “tuning out” the difficult thoughts and worries and fears in my head. But I also realize that relying solely on others’ worlds (via books) to escape doesn’t necessarily help me when I need my brain to relax and cannot simply pick up a book and read for an hour(s). So I’ve been making a conscious effort to meditate on a regular basis. While “the spirit is willing”, my physical commitment to doing this ebbs and flows – I’ll go a week meditating every night, and then miss several before I get back in the swing of it again. I’m working on making it more of a daily habit. I’m hoping that the more I meditate, that it’ll become easier for me to use my meditation techniques throughout the day, without having to stop, get out my meditation cushion, and do a full on guided meditation.

 

dog meditation

Sometimes my dog, Grace, “helps” me meditate.

Romanticizing

In my daydreams, my life has endless possibilities. I romanticize about how I’m going to grow my Spread Hope Project into an important organization and one day I’m going to run this successful nonprofit. I daydream about how I’m going to live on a farm and be more sustainable and have goats and a scottish highland cow (legit dream of mine!) despite the fact that I’ve never farmed anything in my life, am currently struggling to save my houseplants, and don’t know the slightest about raising farm animals. I daydream about traveling around the world – hiking in every country in Europe (not across Europe mind you, but some place in every country).  In the daydreams in my head, my life potential is pretty incredible. And in reality, I’m doing little things to help this along. But I also realize that reality probably lies somewhere between these ideal daydreams and the rut I’m stuck in now, feeling lost and like I’ll never get anywhere. Hence, my confession above, and my effort to actually take action, instead of just thinking and writing about them.

 

Mcow

Cow selfie in the Catskills

Sharing

I’m actually really good at sharing my thoughts, my emotions, what I’m going through. Becoming a mental health and chronic illness advocate and blogger has helped me tremendously in this regard. But what I’m not great with is sharing my time, or those I’m close to. Despite being an introvert that loves having a decent amount of alone time, when I want to spend time with people, I want to spend time with them. I’m not good at sharing in that regard. If I want to hang out or do something with you, I want to hang out or do something with you. Not you and your other friend and her cousin and her cousin’s sister. Just you. Despite my not having been great at connecting with people lately, once I’ve decided that I want to spend that time, I know that I’m demanding in it. Someone wanting to spend quality time with me is, above all else, how I feel cared for and valued and loved. I need to find a better balance in this for several reasons. First, not everyone is as quality time focused as I am,, and I have to respect that. We all feel cared for in different ways, and I need to be amenable to theirs like I ask them to be amenable to my need for time. Secondly, as an introvert with social anxiety, it’s rather unfair to say “much of the time I want to do my own thing and not be social, but when I want to be, you better be available and want to spend time together” So I’m working on trying to strike a more healthy balance, trying to share my time, and to share my loved ones.

So there you have it – my five prompts and my first Linkup Party! Definitely check out the other submissions for this month’s post over on A Chronic Voice!