December LinkUp Party – Holidays and Chronic Illness

It’s a new(ish) month, and that means it’s time for a new Linkup Party from A Chronic Voice.  This month’s linkup is all about the holidays and chronic illness, a topic near and dear to my heart. This month’s prompts are:          (Note: some of these are spelled the way that everyone but the U.S. spells them. I kept them that way – it’s how they were originally posted, and also it makes me feel fancy).

De-StressingD

Holiday stress is different for everyone. For some, it’s family dynamics.  For others, it’s the intense socializing and people-ing, which can be incredibly exhausting both mentally and physically, especially when you battle chronic illness. For others, it’s the expectation – it’s a season for joy and happiness and merriness, and those who are ill, especially those living with depression, often don’t feel this way. It can feel incredibly lonely and isolating, especially when you feel this way in a room full of people. For me, it’s a combination of all of these. 

This year, I’m lucky that because of some… ahem… simplifying in my life (at least in my external commitments), I have fewer networking events, party obligations, etc. That’s helping considerably. There’s significantly less “Go to this party/event and feel super socially anxious and awkward and alone and depressed but smile and pretend everything’s fine because who wants to be the downer at the holiday party.” Additionally, I’ve been spending a lot of my previously free time in yoga teacher training and yoga classes (as part of teacher training), so while my schedule isn’t really any less busy, it’s filled with activities that, while intense, focus a lot on mindfulness, reconnecting to oneself, focusing on the present, and lowering stress levels. It’s also letting me surround myself with others who want to focus on these things, which can be a huge help. I feel emotions – mine and others’ – strongly and tend to absorb a lot of what’s around me. I find more and more, the company I keep and the atmosphere I’m in greatly affects me, and I have to keep this in mind, especially during super stress-induced, emotionally charged times like the holidays.

Savouring

I’m somehow both an old soul, and a kid at heart, and the kid at heart comes out big time during the holidays. Christmas is literally my favorite day of the year. Growing up, holidays were a big deal in my family. We’d have Christmas morning at our house, but usually the next day or so we would drive up to my Grandma’s in Buffalo, NY and that entire side of the family would spend the week between Christmas and New Year’s Day together. Three generations of family, all celebrating, enjoying the same yearly traditions, laughing, and joking and singing (my grandma loved to sing), doing Chistmasy things, ringing in the New Year together.  I remember walking with my grandma to get hot chocolate on the main street that ran through town. I remember all of the Italian Christmas cookies (some that we later found out were fruit cake made to look like cookies.. that was disappointing!).  I remember making ridiculous family videos for New Year’s eve and doing family “talent shows” at the insistence of my Grandma. There was so much love and fun and silliness – LOTS of silliness – and togetherness. We didn’t have lots of money and it wasn’t some big formal affair. We just got together and enjoyed each other and the season. And even though my grandma passed away ten years ago, and only one great-aunt from that generation is still alive, and even though we haven’t gone up to Buffalo for the holiday in years, that all still stays with me. I savour all of those traditions. The cookie baking, the Christmas carols, the lights, the tree-decorating, the laughing, the singing, the togetherness.

Simplifying

Simplifying is a huge goal for me for 2019. A lot has changed for me in the past couple of years. I got married. I went from running a business full time to running it part time and working at a regular job part time, to running it on the side and working at a regular job full time. I increased my advocacy efforts and founded Spread Hope Project. I started yoga teacher training, which I’m still currently undertaking. I went back to church and am slowly beginning to understand my own spirituality more. A lot has been going on, and it’s left me feeling a little all over the place – like I’m constantly in numerous transitions and trying to navigate them all simultaneously.

So in terms of simplifying, I’m focusing on two aspects:

1.) Looking at what in my life still serves me, and what has run its course. Everything from clothes to organizations to that friend that you continually try desperately to hang on to only to realize that it’s been one-sided for a while, and really, they haven’t really been in your life for quite some time. (Note, I didn’t say that with anyone specific in mind, and I don’t plan on friend-dumping anyone, but I don’t need to chase ghosts either). It doesn’t mean that there’s anything wrong with the organizations or the clothes or the friend. But not everything that served you at one point will continue to for eternity. And when you try to make it so, you often get stuck.

2. I’m looking to simplify my inner life. Yoga teacher training and getting back in touch with my spirituality have been a big help. I’m focusing on trying to be more present, to focus on the small moments, to focus on joy and life and hope, and being a good, loving, giving, kind human being in the day to day, instead of feeling insignificant or inferior because the grand scheme of my life isn’t where I hoped it would be. This of course doesn’t eliminate my anxiety and depression because they’re illnesses with no cure, but it helps me feel less overwhelmed at times, and that’s a good start. 

Resting

Resting is huge for me. If I don’t get enough sleep and rest, my moods cycle more, and I become more ill. It affects my IBS and migraines as well.  I’ve been working on trying to schedule things more in advance if possible, so that I can also schedule rest time. Whether it’s getting to bed early or an afternoon/evening of walking Hallmark movies and letting my brain relax, I aim to actively plan rest time. And I try as much as I can to stick to these boundaries. I’m no good to anyone if I haven’t slept, am depressed and anxious, if I’m in pain from IBS and am having trouble seeing straight from a migraine.

Finalising

This prompt is an interesting one, because it’s one I’m actually backing off on a little bit. In part because some of my main focuses are not the type of things that are finalized in the calendar year. For example, my yoga teacher training continues right on through the spring. The end of the calendar year only means we get a couple of weekends off to celebrate the holidays. But apart from that, the training continues on just like it would when transitioning between any other months of the year. 

It doesn’t mean I don’t have goals for 2019, and I’m especially going to work on some goals for Spread Hope Project. I have ideas that I’d like to put into place, or at least work towards, and want to start to plan those steps out.  But mostly, what I’m trying to “finalize” is to get myself into a better place personally, meaning internally, to start the new year, and I’m doing so by focusing on the above – the simplifying, the resting, the savouring, the de-stressing. I’m trying to take some of the self-imposed pressure off of myself, reset a bit, and be ready to start with a bit of a fresh perspective in 2019.

As always, thanks to Sheryl of  A Chronic Voice for hosting the LinkUp Party! Check out her site, as well as the December posts for other chronic illness bloggers here!

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October LinkUp Party: Resetting My Focus

As you may have read in my past blogs, Sheryl over at A Chronic Voice does these awesome blog linkup parties, writing prompts and all – especially helpful if you’ve been dealing with some minor writer’s block like I’ve been.  October’s prompts are:

 

oct linkup

Technically we have to only write on three of the five prompts, but I love each of them, and also, writing is a bit of an …. ahem… escape for me, so I’m going to do all five.

Budgeting:

I’m looking at budgeting literally here, because it’s a big stressor for me.  Let’s just say that earlier today, a financial wellness company sent me an (unsolicited) email entitled “Are you saving too much?” and I laughed out loud. It’s not that I’m a bad budgeter or big spender. It’s that you can’t get blood from a stone, as they say. Or in this case, you can’t get money from a bank account if it’s not in there in the first place. I’m in a bit of credit card debt – not the worst anyone’s been in, but I hate owing anyone anything, especially money, and it really stresses me out.  I’ve started taking a closer look at my bill and spending to see where I can cut things down slightly.

I’m also working on ways that I can begin to make more passive income, as well as paid patient advocate opportunities.  I’d love to make patient-advocacy my full time thing but…. bills.

 

Speeding:

I definitely have a bit of work to do in the “a little less talk, a lot more action” department. I am ideas person by nature. I’m great at the big picture, the brainstorming, coming up with the “Ooh maybe we could do this! And what about that?!” I’m a list-maker and a mind-mapper and every other ideas-related graphic one could create.  It’s the transition from idea to making it happen that trips me up. For instance, I finished writing a novel over a year ago. I still have made no efforts to get it published or even edited. Also: my dad is an editor, so I have literally zero excuses on the editing front. I did have the first chapter of it published online in Wordgathering, which my dad edits and publishes, so that was a big first step – even though it was my dad publishing it, putting it “out there” for general public consumption took a lot of courage on my end.  My goal for the “speeding” part of this is to stop getting stuck in the ideas phase, and to start moving into the action phase – not only with my novel, but with my advocacy as well.  The stagnancy definitely stems that internal voice that tells me it/I won’t ever be good enough, capable, successful. I just have to get better at telling that voice to sit down and be quiet more frequently.

 

Slowing:

My mind races a mile a minute. Anxiety, hypomania, and temporarily being off meds for these because we are family planning and my meds are contraindicated with pregnancy, all tend to wreck havoc on my brain. Things like yoga, meditation, going for a run, being out in nature help, but obviously, these aren’t always accessible and they don’t eliminate it all together. But in the past month, I started yoga teacher training, which means that I’m spending 2-3 weekends a month in yoga teacher “workshops”, for lack of a better word (i.e. we aren’t doing yoga all weekend, we’re studying it), plus taking at least two classes a week, per the teacher training requirements. I’ve spent a lot more time lately slowing down my breath and focusing on things outside of my day to day life, and it’s helping me refocus.  Of course yoga isn’t a cure for my anxiety or any mental illness, but the continual practice and study is helping to get me slow down my racing thoughts more.

 

Evaluating:

If it wasn’t apparent from the “slowing” section, I have a very evaluative brain. I can evaluate just about everything and anything. And I do. My latest struggle emotionally has been a bit of an identity crisis. I’m struggling with where I am (in life, not in Philadelphia), and who I am, and what it all means. I’ve also been turning over a lot of would’ve, could’ve, should’ve in my mind, and particularly, a lot of guilt over the past. To be honest, it almost feels like when I turned 39 last month, and my brain decided that I had reset and restart before the big 4-0, almost like some sort of emotional cleanse. It feels somewhere in between a break through and a break down, and I’m never quite sure which way it is going to go. It’s unsettling, but it also feels like I’m on the verge of something big, if that makes sense.

As I mentioned, I’ve been in-trenched in yoga teacher training, and I’ve also started to be more active in church. To clarify, by “more active”, I mean, I emerged from my 15 year hiatus, and began going to my husband’s church (different style/denomination), and actually paying attention. And interestingly, on Sundays as I go to church followed by yoga teacher training, the messages are eerily similar  – the idea of being part of something bigger, being connected to others, and not having to control it all.  Whether you’re religious or spiritual or not, the reminder of being connected to others in this world through… whatever it is you believe in, even if it’s simply being connected through humanity, and that I don’t have to control every minute of every day for things to turn out OK, is a bit of a comfort. This resonates with me as I’ve been feeling disconnected from everything and everyone, including myself, lately, trying to be so in control of everything.  So I’m trying to shift my focus more to working on connection, instead of working on control. This may sound counter-intuitive to the ‘more action’ statement above, but often, it’s this need for constant control that holds me back from going for things.

 

Escaping

I’d love to escape off to Europe somewhere this fall, but I’ve done that twice already this year, so it’s not really in the cards. So in terms of escaping, I’m actually working on a more personal escape – escaping my strongly held negative beliefs about myself, and some of the patterns of dismissing myself and self-sabotage that I get myself stuck in. Also, as mentioned above, I’m trying to escape some of that nonstop mental chatter, and focus on connecting – with myself at the core (not with the unhelpful stories I tell myself about who I am), with loved ones and friends, with the yogic/spiritual side of me, with nature, whatever serves me. I know this might not be the take on escaping that was intended, but for me, this is the focus right now. Unless I have the chance (read: spontaneous time off and money) to escape to Europe again soon. Then sign me up!

 

Thanks for reading! Make to check out the other participants’ October Linkup posts here!

Philadelphia: Living With Chronic Illness (Invisible Cities LinkUp)

I recently participated in my first LinkUp for A Chronic Voice, and I loved the writing prompts and getting to meet fellow advocates through it. I also love talking about my home city of Philadelphia, so when she posted an Invisible Cities Linkup, focusing on what it’s like to have Chronic Illness in our home cities, I couldn’t resist. Without further adieu…

Best thing about your city for living with chronic illness?

Philly is a pretty tight-knit city – we like to say it’s the biggest small town in the country – and we are a pretty passionate, socially active, and entrepreneurial bunch. Which means that people are not shy about advocating what they stand for, and it’s pretty likely that you’ll be able to find a group that focuses on supporting your illness. And if you cannot, it’s pretty likely that you’d be able to start something and find others who are interested. We love entrepreneurs in Philly, so we’re big on supporting people’s causes, organizations, startups, and the like. For someone looking for resources, support, and/or opportunities to make their voice heard, Philly is a pretty good place to do that.

 

Worst thing about your city for living with chronic illness?

It’s a big, old city, which means crowds, close quarters, smog/pollution, and noise, none of which are far away because of the narrowness of the streets. So if you have sensory issues, like myself, respiratory issues, or crowds make it difficult for you, these could cause you some difficulty. Also, see number three!

 

How accessible do you think your city is in general?

I’ll be honest:  because we were built in the days of horse and carriage transportation, many of our streets are narrow and we have a lot of cobblestoned streets/areas. Also, because we’re so old, we have a lot of historic buildings that are “grandfathered in” when it comes to accessibility guidelines.  So if a building is “historic enough” and elevators weren’t around or prevalent when it was built, it may not be required to add one, even if it technically meets the requirements for having to do so. In other cases, certain doorways may not be large enough for larger wheelchairs or accessibility devices, because quite frankly these things weren’t considered when the buildings were built. These are just a few basic examples, but I’d say that Philly has a ways to go in terms of accessibility across the board. I think we like the idea of being more accessible, we want to be, we just aren’t really sure how to go about it, especially in terms of the historic guidelines.

 

How educated is the public on chronic illnesses there?

I can’t speak for all illnesses certainly, but I can speak from my point of view as someone with a mental health condition. Because of our hospital and university system, there is a lot of public outreach about health and chronic illness, and several of our area universities have student networks that are particularly active in chronic illness and mental health awareness.  Being a large city, a lot of major illness-focused organizations have local chapters in the area, and just about every weekend I see numerous walks, awareness events, and the like for all types of chronic illness.  So I think this helps with the education, or at least the awareness aspect.

From the mental health standpoint, the local chapter of the American Foundation for Suicide Prevention (AFSP) is very active – we’ve hosted the Out of the Darkness Overnight Walk here in Philly twice in the last five years (it’s only held in two cities across the country each year, so hosting it is a pretty big deal). The local chapter also hosts events throughout the year, and they even helped paint a large mural related to suicide prevention in the city  (murals are a HUGE thing in Philly).  NAMI also has numerous chapters in the area, and their chapters frequently are involved in outreach and awareness campaigns, plus they offer a wide variety of resources.  In addition, having a large number of universities in the area, we there’s a large student voice, and I’ve noticed an increasing number of university-related/student group programs, awareness campaigns, events, and so forth.  So I think the public is becoming more educated, and I think people are wanting to be more involved and active in these causes, or at least more knowledgeable about them.  That said, there’s going to be ignorance about chronic and mental illness anywhere, but at least from my own point of view, I usually find that more on an individual level (i.e. a person here or there) as opposed to a pervasive attitude in the city.

 

mile9

Mile 9 of this past year’s Overnight Walk.

 

philly overnight

The finish of this year’s Overnight Walk in Philadelphia, on the steps of our Art Museum.

If you could pass one new law in your country, what would that be?

Not sure about a law, but I would certainly make affordable, quality healthcare and medication more accessible. Nobody should have to choose between going un/under-treated and going into debt.

 

Which is your favourite city or country (other than your own) and why?

For Chronic Illness, or in general? I haven’t lived outside of the US since being diagnosed (I studied in Australia in college and wasn’t diagnosed until age 29), so I can’t speak to it from a chronic illness standpoint. But my favorite city to visit is Paris. I just love everything about it. That said, it’s tough to find a major European city I don’t love!

 

montnarpasse

On top of Montnarpasse Tower in Paris

 

paris restaurant

I mean, how can you argue with that? The owners also eat here!

 

paris street

Paris street.

 

Where in the world would you visit, if disability, illness or level of fitness weren’t an issue?

I’m kind of cheating on this one because in addition to advocacy, I run a travel planning company, so I’ve had the opportunity to travel all over, and I actually often feel more at home when traveling than in daily life – I’m an incredibly restless spirit and a wandering soul. My absolute favorite places to visit have been in Southern and Eastern Africa (Botswana, Kenya, Tanzania), with the caveat that we went the very luxurious route. So probably, I’d go back there, on a similar type of trip. The advantage of my travel there was that all of my travel was private (i.e. no big groups for social anxiety), there were more animals than people (basically my dream environment as a socially anxious introvert), everything felt incredibly open and spacious (physical openness and space helps me feel more mentally/emotionally open and free), and I had everything pre-arranged, so it took the “thinking” out of it once there, so to speak.  I didn’t have to come up with plans for each day, worry how to get from here to there, etc. It was all done in advance, and I had local experts to help us navigate. That was a huge mental freedom for me.

 

mara tent

You can see we really roughed it at the Sarova Mara Camp in the Masai Mara… 🙂

What sort of alternative treatments or therapies wouldn’t raise any eyebrows there? (Perhaps it’s ingrained in the culture, totally legal, etc).

Nothing outside of the norm that I can think of, but we are a pretty culturally diverse city, so I’d say that probably, you’re less likely to encounter raised eyebrows here than some places.

 

Which are the most and least affordable therapies there? How much do they cost in general?

In terms of alternative therapies, I’m not really sure. But I will say that we have a lot of studios that are starting to combine various mind/body activities and treatments – i.e. yoga studios with flotation therapy, access to massages, tissue work, and the like. Often, these studios/companies offer discounts for people who are new, package deals, and other discounts that help the cost.

 

How expensive is it to live with a chronic illness there? Any stats you’d like to share to give a clearer picture?

I’d say that like anywhere in the U.S, it’s expensive to live with a chronic illness, and it all depends on your insurance. I’m lucky that my husband works in healthcare and has fantastic insurance, but before we were married, I paid about $440 a month for basic insurance, and that covered very little, so I ended up paying out of pocket for a ton. I also could only be on generics, because otherwise I’d pay 50% of all medication costs, which would have probably been about $1000 a month. I have no issue with generics, but thre were times I had to not take a medication because it was only name brand and I could no longer afford it. And honestly, none of this considered particularly expensive or unusual for the self-insured around here. I know people paying a lot more. I think this is a U.S. issue in general.

 

What are the hospitals like in terms of service, quality of care, emergency room protocols, etc?

We’re lucky here in Philly, as we have some of the best hospitals in the country. Plus because many of them are connected to Universities, there’s a big focus on research, which also means we tend to be in the forefront with new trials, treatments, procedures, etc.   Honestly, if I had to move away from the Philly area, losing the hospital system would be a huge negative. It’s one of the city’s biggest benefits, in my opinion, for those living with chronic illness.

 

What should foreigners be aware of in regards to healthcare, if they want to visit or work in your city?

I think that for anyone coming from a country where healthcare is free/universal, there would be  a good amount of “sticker shock” in the U.S.  On two occasions, I’ve had to take relatives to the emergency room (albeit for accidents/incidents, not illness) while on vacation in another country, and we’ve paid less for the whole ER visit than I would for a nice dinner out in Philadelphia. Here in the U.S., bills could easily add up to thousands. That said, I’m not sure how this works in terms of those who are visiting and not part of the healthcare system here, but I’d imagine it could be even worse. To me, one of the most startling aspects is that they often can’t tell you even remotely how much your hospital visit/test/procedure/specialist/etc is going to cost. You go in and pay your copay, and then sometimes, often months later, you get a bill for whatever your insurance didn’t cover. This could be $100, $5000, or anything in between, and you often have no idea until you get the bill.

 

Where are you from? What is living with Chronic Illness like in your city? I’d love to hear!

 

It’s My First LinkUP Party! Thanks to A Chronic Voice

ReconnectingConfessing RelaxingRomanticizingSharing

Happy September, slightly belated! Recently, I learned of something pretty cool – LinkUp Parties hosted by A Chronic Voice (shameless plug, go check out her site and learn more about these!). The idea is, she posts writing prompts, we write about them, we share our posts, and we read and comment on others’ (there are more specific guidelines, this is generalizing it). I love writing, prompts, sharing, and connecting, so it seemed like a must do. This is the first time I’m participating in this LinkUp Party, and the writer-geek in me is pretty excited. The prompts for this month are:

  • Reconnecting
  • Confessing
  • Relaxing
  • Romanticizing
  • Sharing

I’ve decided to write a little on all five of the prompts because… well, why not!

Reconnecting

This one is super timely for me. This past weekend, my family suffered a tragedy.  It’s not my place to give details, as it wasn’t directly related to me, but my family members are dealing with an unfathomable loss. As tragedy tends to, it’s drawn us together, which has in turn made me realize how unconnected I’ve been to much of my extended family. I have cousins that I used to spend every holiday with that I haven’t seen in years. If it weren’t for social media, I am not sure I’d know what to half of my family is up to these days. I used to send birthday cards to even the most widely extended family members, and yet this past couple of years I’ve become increasingly bad at doing this. And so I’m actively working on reconnecting with family. Friends too, as I’ve been a bit of a social hermit lately, but family especially. Even if it’s a card, or a text, or a quick email to say hi or check in – we all live scattered throughout the country, many with families of their own, so in-person visits aren’t always feasible logistically. But even in this, I want to improve. I like road trips, I have airline miles. I should take the time and make the effort to see family more – time is our most valuable asset. It’s the one thing we can’t ever get back, and I need to be more cognizant of this and use more of my time reconnecting.

Confessing

Confession: I’ve been big time procrastinating and unintentionally self-sabotaging. Not in an obvious sort of way. Not the “oh yeah I’ll do the laundry tomorrow” and end up with no clean clothes type of thing. Instead, I’ve been procrastinating by continually brainstorming – subconsciously up until this point at least, but now that I’ve realized it the gig’s up. The thing is (confession part 2): I have a pretty serious fear of failure and rejection. Depression makes me convinced that I’m basically always going to fail and be rejected. And this fear often stops me in my tracks. So instead of actually writing pieces to be submitted, or starting on an advocacy project, I brainstorm about them… continually. I make lists. Lists of lists. I do everything but actually get started.  Now don’t get me wrong, brainstorming and list making can be incredibly useful and important tools… when they’re actually needed. But I’m realizing that I’m basically repeating lists and brainstorms over and over again in slightly different ways. I’m getting nothing new out of them. They’re just stalling me from actually beginning. But I just can’t make myself start. It’s like I sit down, ready to go, and poof, there goes every thought I ever had, gone from my brain, and I literally sit there staring. I know that deep down somewhere, it’s fear. And so, I’m trying to work through that. Even if at first I keep most of my articles or posts or projects or whatever it is to myself, I’m trying to get started on them. Even if what I end up with is a bunch of super rough drafts that I’d be embarrassed to show anyone in their current state, at least that gives me a starting point. Because true, the more I do, and the more I eventually, hopefully, put “out there” for others to see, the more chances I have of being rejected, or of failing. But also, the more chances I have of being successful as well.  And I also know that a sure fire way for me to stay afraid of something is to continually avoid it – because often, at least in my anxious brain, the anticipation is way more frightening than the actual situation itself. So I’m working on getting past that.

 

Relaxing

I am decent at relaxing physically, but relaxing my brain is a whole other story. Most frequently, I get engrossed in books, as a way of kind of “tuning out” the difficult thoughts and worries and fears in my head. But I also realize that relying solely on others’ worlds (via books) to escape doesn’t necessarily help me when I need my brain to relax and cannot simply pick up a book and read for an hour(s). So I’ve been making a conscious effort to meditate on a regular basis. While “the spirit is willing”, my physical commitment to doing this ebbs and flows – I’ll go a week meditating every night, and then miss several before I get back in the swing of it again. I’m working on making it more of a daily habit. I’m hoping that the more I meditate, that it’ll become easier for me to use my meditation techniques throughout the day, without having to stop, get out my meditation cushion, and do a full on guided meditation.

 

dog meditation

Sometimes my dog, Grace, “helps” me meditate.

Romanticizing

In my daydreams, my life has endless possibilities. I romanticize about how I’m going to grow my Spread Hope Project into an important organization and one day I’m going to run this successful nonprofit. I daydream about how I’m going to live on a farm and be more sustainable and have goats and a scottish highland cow (legit dream of mine!) despite the fact that I’ve never farmed anything in my life, am currently struggling to save my houseplants, and don’t know the slightest about raising farm animals. I daydream about traveling around the world – hiking in every country in Europe (not across Europe mind you, but some place in every country).  In the daydreams in my head, my life potential is pretty incredible. And in reality, I’m doing little things to help this along. But I also realize that reality probably lies somewhere between these ideal daydreams and the rut I’m stuck in now, feeling lost and like I’ll never get anywhere. Hence, my confession above, and my effort to actually take action, instead of just thinking and writing about them.

 

Mcow

Cow selfie in the Catskills

Sharing

I’m actually really good at sharing my thoughts, my emotions, what I’m going through. Becoming a mental health and chronic illness advocate and blogger has helped me tremendously in this regard. But what I’m not great with is sharing my time, or those I’m close to. Despite being an introvert that loves having a decent amount of alone time, when I want to spend time with people, I want to spend time with them. I’m not good at sharing in that regard. If I want to hang out or do something with you, I want to hang out or do something with you. Not you and your other friend and her cousin and her cousin’s sister. Just you. Despite my not having been great at connecting with people lately, once I’ve decided that I want to spend that time, I know that I’m demanding in it. Someone wanting to spend quality time with me is, above all else, how I feel cared for and valued and loved. I need to find a better balance in this for several reasons. First, not everyone is as quality time focused as I am,, and I have to respect that. We all feel cared for in different ways, and I need to be amenable to theirs like I ask them to be amenable to my need for time. Secondly, as an introvert with social anxiety, it’s rather unfair to say “much of the time I want to do my own thing and not be social, but when I want to be, you better be available and want to spend time together” So I’m working on trying to strike a more healthy balance, trying to share my time, and to share my loved ones.

So there you have it – my five prompts and my first Linkup Party! Definitely check out the other submissions for this month’s post over on A Chronic Voice!