Hi friends and readers. It’s been a while, I know. Apologies. I have been busy, in a great way, the past few months. I thought I’d share a life update, to keep everyone posted on what I’ve been up to. Positive changes in my life are making me feel pretty hopeful about where I’m headed, and while I struggle regularly still with anxiety and depression and mood cycles, this hope stemming from these positive changes helps to keep me afloat most of the time.
First, I graduated yoga teacher training, and am now officially an RYT-200 Yoga Teacher. I have a website for my new yoga/writing/and more business, if you’re at all inclined to check it out. And if you happen to be in the Philly/South Jersey area, I list my upcoming classes on there as well. I have one private yoga client (it’s a family member, but still!), I’m on a sub list for a studio, I’m teaching two upcoming community donation-based classes for charity at The Grant Building where I did my teacher training, and I have a workplace benefit class that’s in the works, which I can’t yet share details about, but I’ll update when I can. So on the yoga front, pretty exciting stuff.
Photo credit: Awesome friend, yoga instructor, and photographer, Aly Gaul.
I also sent my novel to the self-publisher, and I received the first 25 copies of the soft cover book yesterday. Technically, my parents received them at their house because I don’t have things shipped to my city condo, so I haven’t seen them yet. I’ll be there Thursday, and plan to open them then. I’m still getting together the book sale details and release date, so I’ll also file that under “more updates coming soon”.
This past weekend, I completed my 6th AFSP Out of the Darkness Overnight Walk for Suicide Prevention. I traveled up to Boston this year for the walk (the other option was San Francisco, and Boston is significantly closer and less hilly), and as usual, it was an incredible experience. I’ve already filled out the “save my spot” for next year’s event, despite not yet knowing the when or where. It’s that amazing of an event, and of course, such an important cause. The walk is filled with connection and community and tears and hugs and sadness over those lost, but also so much hope for the future as we continue to raise our voices and speak out about mental illness and suicide prevention, to let others know that they are not alone.
So that’s what I’ve been up to. It’s been a productive and busy and exciting spring and summer so far. What have you been up to? What’s giving you hope this summer? I’d love to hear!
I have some exciting news to share! I’ve been nominated for the Disability Blogger award by Amber Blackburn of The World Sees Normal. I’m super excited and honored – Amber, thank you so very much! And also, a huge thank you to Georgina from Chronillicles for creating this Award. Amazing work you are both doing!
I love the opportunity to nominate and be nominated by peers – after all, I’m really about community, connecting, coming together and award by peers, for peers, offers exactly that. Here are the rules:
Use the Disability Blogger Award logo somewhere in your post
Copy these rules onto your post
Answer your nominator’s questions
Write 5-15 of your own questions (they don’t need to be illness related)
Nominate 5-15 other disability, chronic illness, mental illness, or special needs bloggers
Comment on each of your nominees’ latest posts to tell them they have been nominated
So, Amber’s questions for me, and my answers.
What is the biggest lesson you learned from starting your blog.
I’d say the biggest lesson I’ve learned is that it’s OK to not be OK, and that it’s ok to share this too. I find that so often, when I blog that I’m struggling, having a difficult day, flaring, that far from pushing people away (my concern), I find deeper connection. Often, there are so many people around you (in person, or virtually online) going through similar to what you’re experiencing, and yet each of you feels so alone and isolated. When you share your story, you offer that connection to others, and in connecting, you each are reminded that you are not alone.
What is your favorite way to spend your free time?
With family and loved ones. Activity wise, traveling. I love to travel, and I do so every chance I get, though this year time/money/life have made that less possible. Still, though, I love exploring new places, even if it’s just a new coffee shop in the neighborhood, a new nearby town, something more local.
If you could tell people ONE thing about living with a chronic illness what would you want the general public to know???
That my illness is always there, lurking in the shadows ready to pounce even when it’s not obvious to anyone else. When I have a good day, it doesn’t mean I’m “better’ or that my illness has gone away, or that I’m cured. It means I’m not flaring that day, and I’m feeling better (I have a cycling disorder, so by nature, it changes regularly). But even on my best days, I am always aware of it. Always wondering when it it’s going to get bad again. And so often, even when it seems fine, it’s not. Most days are an effort, and for the few that aren’t as difficult, please, just let me enjoy it without questioning my illness.
Do you prefer sweet or salty? What is your all time favorite treat?
Salty! Sweet actually makes me nauceous and gives me a headache much of the time, so no contest there. Also, I’m borderline hyponatremic (low sodium), so I’m encouraged to eat more salt/sodium. All time favorite treat, hmmm… probably fries or vegetarian nachos!
Why did you decide to start your blog/advocacy work?
When I god diagnosed with rapid cycling cyclothymia, I set out to learn as much as I could about my condition, to connect with others who had the same diagnosis, to find communities. And I found next to nothing. My condition is rare, but I thought surely there were others “out there’ that had this who might also want to connect and be looking for resources. And since they didn’t exist, I decided to create them. I started by blogging, and then forming a closed Facebook group (it’s expanded to mood disorders more generally now), and sure enough, I connected with others also in search of community and learning/sharing about this condition. Eventually, I expanded my advocacy to mental health in general, as I saw the amount of stigma surrounding the topic, and wanted to do my part in combating that.
What is your favorite show or movie currently?
I’m not a big movie person because I have very little attention span for basically anything but reading or writing. Most of the time, I tend to watch shows that are low stress, because there’s enough stress in living with chronic illness and just in life in general, and I definitely don’t want to invite more of it, when it’s not even mine! So I watch a lot of things like House Hunters, Hallmark Channel, Cooking shows, and other such shows that let me relax and unwind without being too intense. I also watch a lot of PBS, and particularly, Call the Midwife. It’s the one of the few “dramatic” shows I like.
So now, my questions for my nominees:
What is your favorite part about being a chronic illness blogger/advocate?
If you could visit anywhere in the world (perfect world, no budget kind of scenario), where would you visit?
What’s your favorite animal? Why?
What’s one unexpected positive thing that you’ve experienced since you started blogging/advocating? (It can be something big that’s happened to you, or something more subtle that you’ve experienced internally).
Mountains, beach, city, countryside, or some other type of geography? Why?
Happy April! It’s been a while since I’ve written. I’ve had a lot going on, both in illness and in life – in fact I still do – and I’ve been needing to recenter and refocus a bit. However, I saw the April Linkup Party Prompts from A Chronic Voice, and these always inspire me to post. This month’s prompts are:
I love each and every one of these, so I’ve decided to write on all five.
Tiring
Right now, a lot of things seem tiring. My schedule has been intense for the past few months, as it’s been unusually busy at work and yoga teacher training is coming down to the wire (spoiler alert – see educating for more on this). The lack of down time/free time has been tiring. Not in a bad way, per se, as it’s all towards a greater goal, but still, tiring. More so, my brain has been tiring. Because I live with a rapid mood cycling disorder, my brain is all over the place. It spent all of January and February berating me, telling me I’d never succeed, picking at every tiny vulnerability. I was a giant weeping mess for the first two months of the year. Enter March, and things started to feel better. Not sure why, but they did. I’d been doing a lot of work on myself, and though I know my condition won’t ever go away, I thought at least I was pulling through the darkest pieces, and that my intense work on myself was paying off. And then, April hit. Hit me like an emotional ton of bricks, that is. I’m back to gooey, weepy mess, low self-worth and self-esteem, struggling to see light at the end of the tunnel. And this back and forth, this two steps forward one step back, this constant internal struggle and emotional roller coaster, is incredibly emotionally and mentally tiring.
Educating
As mentioned above, I’ve been participating in 200-hour yoga teacher training since the end of September. I am due to teach my “first class” (basically practicum part of our final) on April 26th, and I have my written final exam April 28th. The past few months have been tons of learning and educating, in everything from philosophy to the physical movements of yoga and everything in between. I’ve been learning how to put yoga flows together, how to choose the right music, the business and ethics end of being a yoga instructor. We were educated on trauma informed yoga (the basics, it’s something I want to pursue further once I graduate). I’ve been steeped in education.
I’ve also been doing a lot of educating myself on myself – everything from working on my courage and learning how I self-sabotage out of fear, to recognizing my codependent tendencies, to learning how to rediscover myself (if you have any tips for this, I’ll take them, this is still a work in progress), to so much more. It’s been super eye opening, helpful, frustrating, and just about every other emotion possible.
Receiving
I’m working on learning how to receive compliments/praise/acknowledgement/basically anything positive, either from others or myself. Low self-esteem, self-worth, and self-confidence make me generally sure that everyone’s “just being nice”, and that I’m not worthy of anything positive actually said about or done for me.
I’m also working on not receiving other people’s negative energy, painful words and actions, judgements, lack of belief in me, or anything else that falls into this realm. To clarify, I’m realistic and value honesty. I don’t want everyone to walk on eggshells or be all fluffy kittens and rainbows with me. But I have often defined myself by other people’s opinions/thoughts/words/actions. They thought the way I did something was wrong? I must be wrong. They didn’t believe in me or doubted me? I stopped believing in or started doubting myself (note: I already do this enough on my own, I don’t need others’ help to do so). This is all part of the codependent tendencies mentioned earlier. It’s still a big issue for me. I”m working on separating my belief in myself and my self-worth, from the negative I receive from others, while still being open to genuine constructive suggestions, alternative ways of doing/seeing things, etc.
Giving
I’m a giver by nature. I give time, I give understanding, I give empathy, I give forgiveness, I lend an ear, I help if someone needs help. Sometimes, in fact, I’m too giving. I try to be everything to everyone, except for to myself. So right now, what I’m working on is more focused giving, both internally and externally. For instance, instead of offering to be everything to everyone, I’m working on specifically reaching out to individual people, checking on on them, saying hi, etc. Not like a quick Facebook comment or like, but sending a persona text or message, really reaching out. I’m working on cultivating close relationships, instead of trying to be everything to everyone. It doesn’t mean that I am not there for others. But I am protecting my own energy a little more. I’m also working on giving to myself. Giving myself the kind words, the encouragement, the belief in self that has often been missing. I’ll get a bit more into this in “Quieting”, below.
Quieting
I’ve been doing a lot of self-work, as I mentioned. Much of this has to do with quieting the negative thought patterns in my mind, as well as reigning my mind in when it tries to run amuck (often). I’ve also been working on spending more time in meditating, yoga of course, prayer, reflection, and body access exercises/body scanning, which all help me with quieting my external environment (I tend to do each of these best in a quieter setting), but also my internal one.
Thanks, as always, for these prompts! It’s good to be back to blogging here again. Don’t forget to go to Linkup Party link in the first paragraph to check out others’ posts for these prompts!
If you live in the U.S, at least the continental U.S., you probably experienced at least some of the polar vortex situation that happened this week. You may well still be experiencing it. I consider myself lucky, since the worst we got here in the Philadelphia were wind chills in the low negatives (I think we had something like a wind chill of -7 Fahrenheit). As I was hearing of wind chills around -40 in other parts of the country, complete with feet of snow and ice and all kinds of wintery mess, I can’t really complain about -7. I also consider myself lucky that I have a home with good heating (albeit drafty windows, but still, good heating) and a roof over my head. I have a very furry doggie that likes to snuggle up with us to keep us warm, so all in all, I am fortunate when it comes to polar vortex-ness.
That being said, cold, dark days where it physically hurts to go outside – because negative windchill is still negative windchill regardless of how cold other places are – often doesn’t feel very hopeful. Unless you’re my dog, who freakin’ loves this weather and must have been a musher dog in a former life or something. The point is, for many of us, especially those who already struggle with depression, hope might have been a little bit tougher this week. I know for me, the fresh air, the sunlight, the warmth all can positively contribute to my mood cycles, and when those basically aren’t an option, it can have the opposite effect. So this week, I had to turn a bit more inward for my daily hope posts.
Colorful pens and field notebook set for journaling, reflection, and brainstorming!
Hope Is colorful pens for journaling (one of my favorite modes of self-care) and little notebooks to keep on me for when I need to jot down thoughts, inspiration, brainstorms, or anything else. As a writer and creative, I get super excited about things like pens and notebooks, at all the possibilities they hold. These pens could write the first lines that inspire me to start another novel. These notebooks could one day have drafts of ideas for #SpreadHopeProject or other advocacy efforts that I one day look back at and say, “that’s where it started!” So much possibility. And color. And elephants (for those who don’t know, I LOVE elephants. Which is why my personal blog is named Lilies and Elephants).
You Be You sign from Spread Hope Sign-Making Party!
Hope Is friends who encourage you to be authentic self. I love this sign from our sign-making party. Be beautiful, amazing you. We all have something wonderful to offer, even when we can’t see it ourselves. Don’t ever let anyone convince you that you need to be anyone else.
Me being me, as suggested by the sign above!
As I’ve mentioned before, it’s been a rough road with depression lately. This past Monday morning though, I woke up feeling a bit better. No rhyme nor reason to it, it just happened. Not super happy per se but more like myself. I felt more solid, physically too – I don’t know how else to explain it. Like I physically felt more at home in my skin, felt more grounded than I’ve been feeling. I felt more secure in myself (as in not questioning my every move or thought) than I have been in ages. I have no idea why, but I did. I realized that it’s literally been years – like close to 20- since I truly felt fully comfortable with myself, since I felt like I was on the right path, like I wasn’t floundering. Since I felt like I was fully worthy, fully enough. Since I was totally OK just being me.
And I’m not there yet because that kind of change doesn’t happen overnight. At least not for me. Some things tripped me up later in the week that brought back into the forefront a lot of self-doubt and lack of self-love that I’ve been working through. But for the first time in almost two decades, this past Monday morning I thought, “I wonder if this is how people who have good self esteem and self worth feel ALL the time?! (Generally, at least because nobody feels great all the time). It was incredible to feel. It was amazing to think “Hey, I actually don’t dislike myself today.” Which is huge! I wasn’t in a hypomanic cycle, so I didn’t have any of that jittery, anxious “i just drank ten cups of coffee “ feeling, which is always a relief. I was just …me. It felt so freeing.
You are enough.
Hope Is a reminder that you are enough. This sign that my friends made at our sign-making is my mantra many days. So often with depression and anxiety it can feel as if you aren’t enough. But you are. And so am I. We all are. Don’t ever let anyone convince you otherwise.
Note I left for my husband when I headed to work one morning this week.
Hope Is little notes. I wrote this note to my hubs bc I was leaving super early (for 6AM yoga) before my husband was up. I like trying to connect through notes when schedules don’t coordinate in the morning. Sometimes, it’s just nice to know someone is thinking about you when they’re going about their busy day. And it also feels really good to write these!
Morning coffee and flower… and they match!
Hope Is simple pleasures like coffee on a cold morning, and my favorite spring mug and flower to cheer me up. Thursday morning was rough. Some things happened Wednesday night that made me question myself, and made me question others’ belief in me (others close to me not random people). It hurt. Bad. Not going to lie. What hurt worse was that depression likes to cling to those things said by others and convince me they’re true. It also hurt because I’d had three good days in a row. I felt like I was finally starting to believe in myself again, for the first time in probably ten years, and this happened, and the hurt it caused made me realize I still am so far from that point. Others’ beliefs still affect me so, so harshly and get me to question myself. And I felt so disappointed in…everything.
So Thursday morning I sat there journaling and letting tears fall and sipping my coffee, because I just needed to let the hurt, the emotion out. But then I looked up at my mug and my orchid from my parents (who support and believe in me unfailingly) and noticed they kind of matched. It made me smile and the fact that, despite the hurt and pain and tears I was experiencing, I was able to still smile at something so small like, this gave me hope. I can get through this, like I have so many other hurts and disappointments, and hopefully I’ll learn something from it as well. I have to look at it as an opportunity to grow, to examine why it hurts so badly and how I can work on that, to work on getting myself to where I want to be.
Happy February! Happy Wear Red Day!
Hope Is days of awareness for illnesses so that we can help educate and inform, and bring awareness to the illness. (And of course the advocates that share their stories every day!) Today is Wear Red Day for women’s heart disease. While it’s not an illness I live with, heart conditions do run in my family (almost all males, however) and I have close friends that live with heart disease. Plus, I just think it’s important to bring awareness to as many chronic illnesses as I can, and if I can do a little by wearing a color and posting, why wouldn’t I? Happy Friday, everyone!
Also, I’m always updating my content calendar so if an illness you advocate for has a “wear x color for this illness” day, let me know! I’ll do my best to dress accordingly and post on that day!
This week was a lot of ups and downs, as life with a mood cycling illness tends to be. Perhaps it was a bit more than most, because of internal factors and external factors. What I held on to, when it got tough, was the work I’ve been doing on self-love and self-heeling. If you too, have had a week like this, please remember you’re not alone. And also remember, as I said in my post yesterday, I believe in you!
As a spreader of hope, I generally try to be… well…. hopeful. But I also try to be super real, because to me, that’s what sharing our story is all about. Yes, I want to offer hope to people, but I also want them to know that I get it, that I understand depression and anxiety and mood cycling (and IBS, and migraines, and other health issues). I want others to know that they’re not alone. That even though I focus on hope, I know that hope isn’t always easy to find. In fact, sometimes, it feels downright impossible. This week was one of those weeks.
It started off well – I was featured on the Voices for Change 2.0 Podcast, which aired Saturday morning. I did well on my first quiz for yoga teacher training. I had a post about my advocacy journey and starting Spread Hope Project featured on What’s The Fix (#WTFix). Several friends and I did our first ever Spread Hope Project Sign-Making Party, and it was a blast – plus, we made something like 26 hopeful signs, which I’ll be sharing more about in a future post. But, cyclothymia is an illness. And it doesn’t care if you did well on your yoga quiz or had your work published or were featured on a podcast any more than, say, cancer would. My depression doesn’t happen because of something. It happens because I have a genetic mental illness that involves depression. Of course, certain things can urge it along, and others can help me feel better at times, but when it hits, it hits. And this week, it hit. Hard.
I share all this because this week really forced me to focus on the tiny moments. I had to dig deep, to look hard to find my daily #HopeIs pictures. I had to look at the mundane that I often ignore. I had to string together small moments to find hope among the clouds of depression and anxiety, of feelings of worthlessness and not being enough. And that’s where a lot of these photos come from. So if you’re struggling this week as well, please know that you’re not alone. And I hope that perhaps these photos will help you find the tiny moments of hope, even if they’re fleeting. Because those tiny moments add up, and they can help us get through those days when the biggest thing we’re going to accomplish is getting through that day.
“More than ever, let’s be together.”
Hope Is being together (as in support, not always physically together, fellow introverts!). Saw this shirt at Grooveground Coffee in Collingswood, NJ, where I am doing my yoga teacher training. I go to Grooveground to get coffee (and on days where I’m feeling like treating myself, a scone) after 6AM yoga at least once or twice a week. And I love this message. It can mean so many things. But to me, the key is “together”. There’s so many things that seem to divide us these days, but supporting each other and being there for each other can be so crucial. So where we can, let’s support each other, let’s be there for each other, let’s be together. The idea of support and togetherness, the knowledge that I’m part of a community, gives me hope, especially on days I’m feeling alone or badly about myself because of my illness.
Snowy Sunday morning in the courtyard at my condo.
Hope Is the calm, purity of a snowy morning before the world disturbs it. I love watching the snow gently fall. At almost 40, I’m still reminded of the excitement of potential snow days as kids- the happiness and carefree nature of a day full of play, of sledding and making snow angels, of coming inside and warming up with hot chocolate. As an adult of course it means shoveling and traffic and all that, not to mention creaky joints and sinus pressure and all that, but early in the morning, undisturbed like this, I can still appreciate all the fun and anticipation snow can bring, and it makes me smile.
Mural on my commute to work.
Hope Is using ordinary spaces to create extraordinary things. Philly is known for its murals. It’s not uncommon to see incredible artwork beautifying and bringing a vibrancy to what was an ordinary train trestle, wall, building, etc. I love the idea that we can truly make any space a place for hope- weather its through a message written, a story told through images, or just bringing color to a place that might seem to need some vibrancy.
I feel this way about life as well. Sometimes it’s in the most ordinary moments that we find the most extraordinary. It may be having a good where we feel a little better after so many difficult ones. Or a surprise message of courage and support in an unexpected place or from an unexpected person. It may be finally being able to smile, if even for a moment or two, after being in a really dark place with depression. And it may all happen on a cold, dreary Monday when you least expect it.
(Note: The pics of this mural look way more vibrant on our Instagram, so check it out).
A bench in Collingswood, NJ.
Hope Is this colorful bench full of creativity and thoughtful words in the midst of the cold and the snow. “In a dream I saw the new city of friend’s robust love- it led to the rest.” I’ve admired this bench for a while, and with the contrast between the vibrant colors and the white snow covering, it was too good not to snap a picture and share!
A sneak preview of some of the signs from the Spread Hope Project Sign Making Party!
Hope Is friends who (drive through yucky weather) to come help you make HOPEful signs of encouragement, and who make you laugh and smile while doing so. As I mentioned a while back, I’d reached out to friends and fellow advocates asking “If I made you a hopeful sign what would it say?”. They replied with some awesome answers, and then my friends and I got crafty (OK they got crafty, I got an A for effort!) making the signs. I’ll have more up close pics of signs coming soon, and I’ll tag those that offered the inspiration accordingly. This is the first of many sign pics.
A super sleepy me after depression-fueled tears at about 6AM one morning this week.
Hope Is getting through the day even when it feels impossible. On especially tough days, I focus on the fact that when you struggle with illness, even the seemingly basic things are big accomplishments. I’m getting through this day, little by little, hour by hour, and today, that’s huge. So if that’s you too, know that you’re not alone. Much love and hope to you.
Appreciating my warm cup of coffee (and heated seats!) on a snowy commute to work.
Hope Is all the little moments that make up my day, that I can rely on to get me through when depression and anxiety are kicking my rear. Like a warm cup of coffee on a cold, snowy morning. Or the 6AM yoga practice I did this morning. Or the warm car that gets my door to door nice and dry even in the snow. When I’m having a rough time, I try to live from one of these moments to the next. It helps me feel less overwhelmed and makes the days more manageable.
If you’re struggling this week too, please know that I get it, I understand, and I’m here if you need. I hope that you are able to find some tiny moments to string together to offer hope each day, even if just to get you through. Happy Friday to you all!
This week brought ups and downs (as life with a rapid mood cycling disorder is likely to do). I had some really amazing advocacy opportunities that I’m super excited to be a part of, which I’ll be sharing shortly, and I also had a couple of pretty difficult days.
One thing I noticed, as I was posting my daily “Hope Is” pictures on Instagram, is that a good number of them involved light in some way. This isn’t a novelty in the context of hope – we often hear phrases like “the light at the end of the tunnel”, which illustrate hope as a light that leads us from the darkness or a difficult time. Still, I loved seeing that in looking for my daily images of hope, I was literally drawn to the light as a visual representation. I hope that if you, too, are struggling this week, perhaps these thoughts will help give a tiny bright spot in your day as well. I’ve also changed up the format of this one because, well, I really love these photos, these visual representations of hope, and I wanted to make them slightly larger.
Yogi Tea Wisdom
Hope Is living by your inner knowledge and strength. I love the inspiration I get from my Yogi Tea bags. Sometimes, we just need these simple reminders. Even when we struggle to see it in the depths of depression or anxiety, we have so much strength within us. Even just getting through the day sometimes takes so much strength. Never forget how strong you are (or at least try to remind yourself repeatedly!).
Be silly, be honest, be kind
Hope Is reminders like this that make me smile. We were at a friend’s house over the weekend and I saw this, and asked if I could snap a picture of it. If some asked me to give a brief directive on how to live, this might about just some it up. And of course, be hopeful.
Sunrise over Collingswood, NJ – post early morning yoga class
Hope Is a gorgeous sunrise literally brightening your commute to work on a cold, January Monday morning. I take an 6AM morning yoga class at least one day a week as part of my yoga teacher training. While getting up in the 4 o’clock hour to get ready for the day (since I leave for work right from yoga) isn’t my favorite thing to do, I love coming out of yoga to see the sun rising over the main street.
Orchid that my parents got me for Christmas
Hope Is the gift of a beautiful orchid in full bloom. I love orchids. I’m not sure how it started, but a while back, each time I was going through a rough time, I got an orchid from… someone… it varied who the giver was, or how the orchid came into my life. But each time, it seemed as if I was on the precipice of something, I would get an orchid, and I would, amazingly, manage to keep it alive, to keep it blooming and beautiful, and this somehow restored my belief that I’d come out on the other side of whatever I was going through and be OK. So the orchid came to symbolize a sort of hope during life transitions. My parents got me this orchid for Christmas, and so far, so good on the keeping it alive front. And as even my not so green thumb knows, orchids need the light to thrive.
Sign-making party goodies!
Hope Is getting ready for a Spread Hope Project Sign Making “Party”! A while back, I wrote a blog post asking the question “If I Made You A Hopeful Sign, What Would It Say?” I subsequently posted this question on my social media outlets, with the acknowledgement that answers may, unless specifically requested, actually wind up on a sign that I made, and be posted on social media. I got some amazing responses, and now, I’m keeping good on my promise. This coming Sunday, a few friends and I are getting together to make signs old school arts and crafts style. It’s not to late to request a sign, so if you have a something hopeful you’d like to see on a sign, let us know!
Luminaries at the finish line of the Overnight Walk for Suicide Prevention 2018
Hope Is thousands of people walking 16-18 miles overnight for suicide prevention and awareness. These luminaries lit up the finish line of last year’s walk in my home city of Philadelphia, and how amazing that they spell out the word HOPE!
I just signed up for my 6th Out of the Darkness Overnight Walk for Suicide Prevention. This is an absolutely incredible event that, despite the sadness of loss that brings so many to participate, offers hope that with each step we take, we’re raising awareness, eroding the stigma, and offering hope to those who struggle, so that they know they’re not alone. Shameless plug here – I need to raise $1000 to participate each year. If you’re inclined and able to donate, the link to my page is here. No amount is too small, as there’s no minimum, so you can literally donate $1.
The light catching the trees in my neighborhood just right to welcome me home from work.
Hope Is the light catching the trees just right, so that even the stark, barren trees of winter look radiant against the lit up sky. I love the idea that even in the cold, dark days of winter, where there’s little blooming (except my orchid!) and life just seems to be stalling, that we can be reminded that if we look at it from the right angle, it can still look beautiful, even in its starkness. I find this can be applied to my life as well. Of course just “looking at it differently” doesn’t magically make my anxiety or depression vanish – they’re illnesses, and you can’t cure an illness by changing your attitude or viewpoint. But sometimes, when I’m really struggling with the way that I’m feeling about myself, it helps to remind me that there may be another way I can look at the situation to get a slightly different view of it. I’ve found that in my advocacy work – there’s nothing good about having a chronic illness, but having my illness has led me to some amazing communities and people, to my work with Spread Hope Project and my other advocacy efforts, and but for my illness, I likely would not have been part of any of that.
If you have pictures of light (literal or figurative) that’s inspired you, I’d love to see them!
This week’s Hope Is weekly roundup is a mish-mosh of holiday fun, self-care reminders, and a bit of a look back at advocacy efforts over the year. Plus, a bit thank you to all of those patient-centered organizations that welcomed me as a member! I know that the holidays can be a bit a tough time for some, so as much as I wanted to include some holiday hopefulness this week, I also wanted to include some self-care and gentle loving reminders.
Hope is celebrating the winter solstice with friends, yoga, and purple lotus candles. Love that the days are getting longer/brighter. Dark days are tough on mental health at times, so here’s to increasing sunlight!
Hope is sometimes just making it through the day. A friend sent me a photo of this sign and I love it. Right now especially, with increased demands of the holiday season, it can be especially tough on chronic illness. Holiday time is all about love and compassion- let’s not forget to give that to ourselves as well.
Hope is someone seeing the potential in what to others might look ordinary or even bare/empty. Love that someone decorated this tree in my neighborhood with a few Christmas bulbs. Sometimes life is like that – we just have to look a little harder to see the potential in the every day.
Hope is family, traditions, giving, sharing, love. That’s what my Christmas was filled with. Merry Christmas to all who celebrate.
Hope Is the chance to take time out for yourself when you need to recoup/recover/restore. For me, this is often mindfulness/yoga, or some other way to calm my cycling brain. Whatever you choose, self care is so important, especially during the busy, stressful holiday season.
Hope Is finding so many incredible patient-centered organizations this year to be part of. This year I became a #MightyEvents host for @themightysite; became a #webewarrior@healthbeme; joined the @clarahealth#breakthroughcrew; increased my participation in @wegohealth and got nominated for a blogging award; and (not featured because I don’t yet have pics) became a #savvypioneer with @savvy_coop and a #nostigmas ally with @nostigmas. I also met SO MANY amazing fellow advocates through these. Their efforts and openness and hard work and the impact they’re making, and also them just being them and being amazing gives me hope every day.
Hope Is unexpected reminders that you are beautiful (in every way, inside and out, just as you are). I don’t usually whip out my phone in a bathroom, but I love this on the mirror at my yoga studio. Sometimes we could all use a reminder. This makes me smile every time I see it, and if I’m having a rough mental health day, that small moment in which it makes me smile can really help.
For more hopeful posts, and to follow along throughout the week, don’t forget to follow us on Instagram! Wishing you all a wonderful end to 2018!
It’s week two of my #HopeIs Campaign on Instagram, and as mentioned last week, I’ll be doing a weekly roundup each Friday of that week’s posts. This week’s photos go Saturday to Friday because I’m weird and that’s how I roll. Without further adieu, here are this weeks’ photos. Several are holiday inspired because… tis the season!
Hope is a reminder to appreciate and honor yourself, exactly as you are. (Inspiration source: bag of yogi tea).
Hope is a quiet morning of writing and coffee at a favorite coffee shop.
Hope is starting the week with grounding early morning (6AM) yoga at a place that always makes you feel at peace at home. These are my people, and finding your people can make all the difference.
Hope is a quiet, clear late fall morning, the light from sunrise letting you appreciate how much you love your neighborhood, a day ahead to full of possibilities. Sometimes, this simple image can help me refresh the clutter in my brain.
Hope is sending messages of love, hope, & peace for the holidays – each one is hand written with and actual message. When I am feeling depressed or anxious, that personal connection, even by being the one writing the card, is huge.
Hope is communicating love. Simple as that. More yogi tea inspiration (I don’t work for them, I promise!).
Hope is a handwritten thank you note for bringing someone joy. In this case, from our neighbor, for brightening up our shared courtyard with Christmas lights on our deck. So kind of them to write.
I hope you all had a wonderful week! Happy Winter Solstice. May your days get brighter as the days get brighter. I hope you’re all having a wonderful holiday season!
Some people love the holiday season. For some people, it’s an extremely stressful time. For many, like me, it’s both. In a bubble, I love the holidays, especially Christmas. I love everything about it – the sites (lights), the sounds (carols, Christmas music, bells), the smells (holiday cookies). I love spending time with loved ones, exchanging gifts – not because I love getting stuff, but because I just love the whole idea of offering to another, of exchanging. Christmas to me is the ultimate time of hope. I’m not sure why – I can just feel it. I’m like a kid eternally riding the Polar Express, anticipating its arrival at the north pole. But it’s also a time of stress.
In the bottom right, our dog Grace, waiting (a week early) for Santa Paws. (Note: please ignore the mess that is my home).
First off, when you deal with depression and anxiety, the continual month long holiday party that is the month of December can be draining. One can only go to so many social gatherings that make them feel awkward and anxious, pretending all is great while secretly holding back tears, feeling alone and lonely in a room full of people, so many times. It’s not that I don’t enjoy holiday parties, because I do. It’s that I only enjoy a limited number of them, with a limited number of people, a limited number of times. Secondly, when you battle illnesses that heighten sensory perception (migraines, anxiety, and many others), the sights and sounds and smells and especially the crowds can go from merry to debilitating in a short amount of time. Additionally, all of the focus on “togetherness” of the holidays can be particularly difficult for people who often feel alone and isolated because of their illness (there’s possibly nothing lonelier than feeling completely alone and isolated in a room full of people, especially people you know, who are all enjoying themselves and expecting you to). It can also be difficult for those who have lost loved ones, especially if they’ve lost them around this time of year in the past.
So with all of this conflicting emotion, how can one stay hopeful during the holidays? I don’t have all the answers, of course, but I do have some suggestions that I hope might help.
Remember that the holidays are a time of giving and kindness. And that includes you too. It’s easy to forget that you, also, deserve generosity and kindness. Be gentle with yourself. Remind yourself that this is a stressful time of year, and that you’re doing the best you can. And give yourself breaks. Actual ones (rest and recuperation are key), but also mental and emotional ones. You’re human. The best you is the best you can do.
Take time for something that’s really important to you. I’ve bolded the word intentionally. This means really for you. Not, “This is important to my boss or my kids or my significant other and I don’t want them to be mad – them not being mad at me is important to me.” No, that’s for them. Now, if what you really love to do is go hiking with your spouse, then do so. And if your spouse enjoys hiking too, great. But make sure it’s something you truly want to do. Finding time for things that bring us joy offers hope that we can get through the stress, and still find some happy moments.
When conflict arises, focus on finding solutions that give a little to everyone. Let’s face it, family and interpersonal dynamics at the holidays can be stressful. Everyone has their own ways of doing things, their own traditions, their own views on things. Work together to find solutions that bring a piece of everyone’s traditions/ways/viewpoints (assuming they aren’t actively harming someone else). All have some say, no one has all the say. Remember, it’s a season of giving, of kindness, of hope, of joy. If everyone tries to offer these to each other when conflict arises, nobody feels completely unheard. Managing conflict in stressful, and making sure everyone feels like they’re being given some kindness and understanding definitely gives me hope. You might even start some new traditions.
When it’s tough to find hope in the bigger events of the season, see if you can find hope in the smaller moments. For me, that’s often a warm cup of coffee and writing on a cold morning. It’s coming into the house to see our Christmas tree lit up. It’s hearing my favorite Christmas song. It’s seeing people give, donate, volunteer, help each other, even in the tiniest ways.
Get back to basics. The last time you really enjoyed the holidays, what was it about them that gave you joy and hope? Was it spending time with loved ones? Was it certain traditions? Was it the feeling of hopefulness and expectation you felt as a kid? Is it something rooted in your faith or beliefs? Whatever it is, can you find a way to reconnect with that again? It might not be exactly the same, but perhaps connecting with it in a way, and bridging the past joy with the present, will provide a way to reconnect with hope and joy.
When all else fails, remember that it’s called a holiday season for a reason. It passes, and eventually another, hopefully less difficult season, will come. You’ve gotten through it before, and you will get through it again.
Do you have some favorite ways for bringing hope into the holidays?
It’s a new(ish) month, and that means it’s time for a new Linkup Party from A Chronic Voice. This month’s linkup is all about the holidays and chronic illness, a topic near and dear to my heart. This month’s prompts are: (Note: some of these are spelled the way that everyone but the U.S. spells them. I kept them that way – it’s how they were originally posted, and also it makes me feel fancy).
De-StressingD
Holiday stress is different for everyone. For some, it’s family dynamics. For others, it’s the intense socializing and people-ing, which can be incredibly exhausting both mentally and physically, especially when you battle chronic illness. For others, it’s the expectation – it’s a season for joy and happiness and merriness, and those who are ill, especially those living with depression, often don’t feel this way. It can feel incredibly lonely and isolating, especially when you feel this way in a room full of people. For me, it’s a combination of all of these.
This year, I’m lucky that because of some… ahem… simplifying in my life (at least in my external commitments), I have fewer networking events, party obligations, etc. That’s helping considerably. There’s significantly less “Go to this party/event and feel super socially anxious and awkward and alone and depressed but smile and pretend everything’s fine because who wants to be the downer at the holiday party.” Additionally, I’ve been spending a lot of my previously free time in yoga teacher training and yoga classes (as part of teacher training), so while my schedule isn’t really any less busy, it’s filled with activities that, while intense, focus a lot on mindfulness, reconnecting to oneself, focusing on the present, and lowering stress levels. It’s also letting me surround myself with others who want to focus on these things, which can be a huge help. I feel emotions – mine and others’ – strongly and tend to absorb a lot of what’s around me. I find more and more, the company I keep and the atmosphere I’m in greatly affects me, and I have to keep this in mind, especially during super stress-induced, emotionally charged times like the holidays.
Savouring
I’m somehow both an old soul, and a kid at heart, and the kid at heart comes out big time during the holidays. Christmas is literally my favorite day of the year. Growing up, holidays were a big deal in my family. We’d have Christmas morning at our house, but usually the next day or so we would drive up to my Grandma’s in Buffalo, NY and that entire side of the family would spend the week between Christmas and New Year’s Day together. Three generations of family, all celebrating, enjoying the same yearly traditions, laughing, and joking and singing (my grandma loved to sing), doing Chistmasy things, ringing in the New Year together. I remember walking with my grandma to get hot chocolate on the main street that ran through town. I remember all of the Italian Christmas cookies (some that we later found out were fruit cake made to look like cookies.. that was disappointing!). I remember making ridiculous family videos for New Year’s eve and doing family “talent shows” at the insistence of my Grandma. There was so much love and fun and silliness – LOTS of silliness – and togetherness. We didn’t have lots of money and it wasn’t some big formal affair. We just got together and enjoyed each other and the season. And even though my grandma passed away ten years ago, and only one great-aunt from that generation is still alive, and even though we haven’t gone up to Buffalo for the holiday in years, that all still stays with me. I savour all of those traditions. The cookie baking, the Christmas carols, the lights, the tree-decorating, the laughing, the singing, the togetherness.
Simplifying
Simplifying is a huge goal for me for 2019. A lot has changed for me in the past couple of years. I got married. I went from running a business full time to running it part time and working at a regular job part time, to running it on the side and working at a regular job full time. I increased my advocacy efforts and founded Spread Hope Project. I started yoga teacher training, which I’m still currently undertaking. I went back to church and am slowly beginning to understand my own spirituality more. A lot has been going on, and it’s left me feeling a little all over the place – like I’m constantly in numerous transitions and trying to navigate them all simultaneously.
So in terms of simplifying, I’m focusing on two aspects:
1.) Looking at what in my life still serves me, and what has run its course. Everything from clothes to organizations to that friend that you continually try desperately to hang on to only to realize that it’s been one-sided for a while, and really, they haven’t really been in your life for quite some time. (Note, I didn’t say that with anyone specific in mind, and I don’t plan on friend-dumping anyone, but I don’t need to chase ghosts either). It doesn’t mean that there’s anything wrong with the organizations or the clothes or the friend. But not everything that served you at one point will continue to for eternity. And when you try to make it so, you often get stuck.
2. I’m looking to simplify my inner life. Yoga teacher training and getting back in touch with my spirituality have been a big help. I’m focusing on trying to be more present, to focus on the small moments, to focus on joy and life and hope, and being a good, loving, giving, kind human being in the day to day, instead of feeling insignificant or inferior because the grand scheme of my life isn’t where I hoped it would be. This of course doesn’t eliminate my anxiety and depression because they’re illnesses with no cure, but it helps me feel less overwhelmed at times, and that’s a good start.
Resting
Resting is huge for me. If I don’t get enough sleep and rest, my moods cycle more, and I become more ill. It affects my IBS and migraines as well. I’ve been working on trying to schedule things more in advance if possible, so that I can also schedule rest time. Whether it’s getting to bed early or an afternoon/evening of walking Hallmark movies and letting my brain relax, I aim to actively plan rest time. And I try as much as I can to stick to these boundaries. I’m no good to anyone if I haven’t slept, am depressed and anxious, if I’m in pain from IBS and am having trouble seeing straight from a migraine.
Finalising
This prompt is an interesting one, because it’s one I’m actually backing off on a little bit. In part because some of my main focuses are not the type of things that are finalized in the calendar year. For example, my yoga teacher training continues right on through the spring. The end of the calendar year only means we get a couple of weekends off to celebrate the holidays. But apart from that, the training continues on just like it would when transitioning between any other months of the year.
It doesn’t mean I don’t have goals for 2019, and I’m especially going to work on some goals for Spread Hope Project. I have ideas that I’d like to put into place, or at least work towards, and want to start to plan those steps out. But mostly, what I’m trying to “finalize” is to get myself into a better place personally, meaning internally, to start the new year, and I’m doing so by focusing on the above – the simplifying, the resting, the savouring, the de-stressing. I’m trying to take some of the self-imposed pressure off of myself, reset a bit, and be ready to start with a bit of a fresh perspective in 2019.
As always, thanks to Sheryl of A Chronic Voice for hosting the LinkUp Party! Check out her site, as well as the December posts for other chronic illness bloggers here!
Spread Hope Project 